Another medical update for Lizzy Grace

Lizzy had a bit of a disheartening visit to the Doctor’s on Monday. She has been starting to have more pronounced symptoms of the heart failure and so I called the doctor to let her know. She told me to bring her in and get another chest xray. Lizzie’s xray showed her heart had enlarged a little bit more. Dr. Samyn prescribed another medication called Captopril. Captopril will reduce the pressure on the left side of the heart so hopefully less blood will escape through that hole going the wrong way. She takes it three times a day so poor lizzy has to gag down medicine five times a day. She actually is really good at taking it- what an angel.
The worst part of our visit is that Lizzy had not gained ANY weight since the last visit which means that she truly is too tired to take in enough food. I am going to try more frequent short feedings and I have been advised to wake her up every three hours in the night to eat too. Hopefully along with the medication and more persistent food offering she will eat enough to gain weight. Dr. Samyn said it sounds like she will definitely need surgery and the sooner the better. The surgery schedule is totally full for December and kids who are already in the hospital waiting take priority so it looks like maybe January. Hopefully Lizzy will start gaining weight- the last resort is to insert a feeding tube. Does anyone have any advice getting babies to take a bottle? It would be nice to fortify her meals sometimes but she is not much of a bottle lover. We will keep trying. Thanks again for all your support and love.